Your Family's
Dedicated Staff Member

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Tyler Goevert

School Age Education Coordinator
Ages 12 - 18

Teen Years

Welcome families of teens with Down syndrome! Down Syndrome Innovations offers opportunities and guidance for teens to build skills and reach their potential, as well as educational opportunities and future planning support for parents and caregivers.

We are on this journey with you, now and throughout the lifespan of your teen. Consider us your lifetime provider on this journey.

Get Connected

Have you filled out our contact form?

We encourage you to fill out this contact form so a member of our team can follow up with you and recommend relevant services and supports, and we can add you to our mailing list.

It is especially critical that we have the birth date of your teen. Birth dates are very important as they guide us in which services and supports to recommend to families at each stage of life. At this stage in the lifespan, we specifically target communication to families who have teens approaching adulthood, so we can ensure you have access to critical transition information prior to your teen turning 18 years old.

We will follow up with you promptly after we receive your contact form, but you are welcome to message us directly as well, as we want to be responsive to your needs: tyler@kcdsi.org

Your Personalized Newsletter

Wherever you are on your journey, our expert Lifespan Services Team is with you continually finding new ways to offer innovative services for every age and season of life. That’s why in May, we created a personalized, monthly newsletter for your family—check out our latest!

 

Services & Support

Down Syndrome Innovations offers services and support to families of teens with Down syndrome.

Complimentary Consultations (virtual or in-person)

We can schedule time with you to get to know the needs of your teen and all of the caregivers involved in his or her life. We will discuss services and supports relevant to this stage of the journey. We want to make the process of engaging with our organization as easy as possible for your family. If you are not sure what you need or how we can help, signing up for a consultation is the best step forward. There is something we can do at every step of the journey to support your family.

 

Family Portal

Join other families on our family portal and stay connected with our organization.

COMING SOON!

We are currently in the process of creating our family portal.

Skill Building Series for Teens (Evenings)

Our Skill Building Series is designed for teens with Down syndrome in the age range of 12 years to 18 years old. Learning content will be driven by our organization’s six Pillars of Programming: Daily Living, Communication and Social Skills, Community Engagement, Self-Advocacy, Vocational Development, and Health, Wellness, and Safety.

We will cover specific topics such as leisure skills, problem solving, health and wellness, job skills, relationships, daily living skills, and other essential skills.

Additionally, we want to build independence and confidence, empower self-advocacy, increase physical activity, and prepare the teens for a meaningful and productive life after high school. During these evening small groups, teens have the opportunity to make new friends and try new skills in a safe and supported setting. Teens and parents can simply pick the skill-building topic they want to register for then choose the series of dates that work for your personal calendars. If you are registering after the series has begun, we still welcome you.

Due to the ongoing situation regarding COVID-19, we will begin these programs virtually. Once it is safe to do so, future programs will move to an in-person setting with a virtual option available for those who live at a distance or cannot attend in-person.

*This service is complimentary, fully funded by our generous donors.

Teen Social Group (Evenings)

Although we are outcome-driven and focused on building skills at Down Syndrome Innovations, we also understand the importance of providing less structured opportunities for fun and meaningful connection, so a more casual social hour is offered every week that teens can pop into anytime. These social hours are focused on building friendships and enjoying conversation in a low-pressure and casual environment. These groups occur on intermittent Wednesday evenings.

Due to the ongoing situation regarding COVID-19, we will begin these programs virtually. Once it is safe to do so, future programs will move to an in-person setting with a virtual option available for those who live at a distance or cannot attend in-person.

*This service is complimentary, fully funded by our generous donors.

 

Pathways Therapy Services

Our therapeutic services, designed and facilitated by our highly skilled and licensed therapy team, equip your teen with Down syndrome, his/her caregivers and extended family members, with skill-building strategies and individualized supports that are targeted to daily life in the home and community. The Pathways therapy team includes a Board Certified Behavior Analyst (BCBA), Occupational Therapists (OT), and Speech-Language Pathologist (SLP). Some services are designed for coaching caregivers and others are designed for direct intervention with your teen with Down syndrome. Pathways therapy services may take place on our Lifelong Learning Campus in Mission, KS or through teletherapy.

*This service is private-pay, fee-for-service, and is significantly subsidized by our philanthropy. If finances are prohibitive, inquire about our county grant partnerships or funding support.

 

Long-Term Planning Consultations

We are committed to preparing teens with Down syndrome for a meaningful, productive, and authentic adult life. This requires providing assistance to parents and caregivers for future planning. This 3-session service, facilitated by a specialist on our Lifespan Service Team, provides individualized support to parents and caregivers to better prepare for the transition towards adulthood. Tasks and exercises within these sessions may include contacting your local CDDO, applying for public funding, accessing local ID/DD services, learning about supported decision making, and defining action steps towards long-term goals. Our Lifespan Service Team will help you prioritize and plan according to your teen’s age and your family’s specific situation.

*This service has a nominal fee-for-service, and is primarily funded by our generous donors.

 

Good Life Series

Everyone want to a live a good life! Preparing our teens with Down syndrome ahead of time is the key to living the life of their dreams. We are committed to helping parents and caregivers create a seamless transition to adulthood. It is never too soon to plan for the future. This parent educational series provides information on legal options, financial support, post-secondary education, prevocational opportunities or employment, supported or independent living, and especially, strategies for promoting independence.

*This service is complimentary, fully funded by our generous donors.

Resources

Down Syndrome Innovations provides essential, vetted resources to teen self-advocates, and parents and caregivers of teens with Down syndrome.

Health Care Information for Families of Teens with Down Syndrome

The Down Syndrome Health Care Guidelines are a thoughtful composite of the input of many experts involved in the care of people with Down syndrome. They reflect current standards and practices of health care in the United States of America. They have been designed for a wide audience: for health care professionals who are providing primary care, as well as specialists, nursing personnel and other allied health professionals, educators and early intervention providers, and parents and other caregivers.

Other Websites

Here are some other sites that might be useful.

Down Syndrome Clinic at Children's Mercy Hospital

Down Syndrome Clinic at Children’s Mercy Hospital serves as a medical screening mechanism for children with Down syndrome from birth through adolescence, following the Health Care Guidelines created by the National Network of Medical Clinics for Children with Down syndrome. An experienced team of professionals with an expertise and interest in Down syndrome participate in a weekly Down Syndrome Clinic in which each provider meets with the scheduled patient and their family to review and evaluate the specific needs of each child.

Events

Teen Connection Events
We will host quarterly large-group events in the community or at our Lifelong Learning Campus to encourage fun and connection among our teens, as well as for the purpose of introducing families to our staff and services.

*These events are complimentary, fully funded by our generous donors.

Skill-building in the kitchen

Skill Building Series: Independent Kitchen Skills

This group will be held *weekly via Zoom. This series will bring back our focus on following a recipe, preparing ingredients, and building confidence in the kitchen. The series... READ MORE

Woman enjoys fitness activities

Skill Building Series: Self-Advocacy & Leisure Skills

This group will be held *weekly via Zoom. Self-Advocacy & Leisure Skills will focus on helping teens grow their self-advocacy skills such as identifying what they like and don’t... READ MORE

Grand Opening of the Lifelong Learning Campus

Join us for this exciting milestone for our organization and the families we serve! Check out our new building; meet our team; celebrate our 37th Birthday (yes, there will... READ MORE

  • Date:June 19, 2021
  • Time:9:00 – 11:00 am
  • Location:5916 Dearborn Street, Mission, KS 66202
  • Learn More

Teen Social Group

2021 Summer Teen Social Groups will occur *weekly on Wednesdays via Zoom. These social hours are focused on building friendships and enjoying conversation in a low-pressure and casual environment.... READ MORE

Ages 12 - 86

Teen Years

Welcome families of teens with Down syndrome! Down Syndrome Innovations offers opportunities and guidance for teens to build skills and reach their potential, as well as educational opportunities and future planning support for parents and caregivers.

We are on this journey with you, now and throughout the lifespan of your child. Consider us your lifetime provider on this journey.