Your Family's
Dedicated Staff Member

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Tyler Goevert

School Age Education Coordinator
Ages 6 - 12

Childhood

Welcome families of children with Down syndrome! Down Syndrome Innovations offers services for the developmental progress and social success of your child, as well as educational opportunities and future planning support for parents and caregivers.

We are on this journey with you, now and throughout the lifespan of your child. Consider us your lifetime provider on this journey.

Get Connected

Have you filled out our contact form?

We encourage you to fill out this contact form so a member of our team can follow up with you and recommend relevant services and supports, and we can add you to our mailing list.

It is especially critical that we have the birth date of your child. Birth dates are very important as they guide us in which services and supports to recommend to families at each stage of life.

We will follow up with you promptly after we receive your contact form, but you are welcome to message us directly as well, as we want to be responsive to your needs: tyler@kcdsi.org

Your Personalized Newsletter

Wherever you are on your journey, our expert Lifespan Services Team is with you continually finding new ways to offer innovative services for every age and season of life. That’s why in May, we created a personalized, monthly newsletter for your family—check out our latest!

Services & Support

Down Syndrome Innovations offers services and support to families of children with Down syndrome.

Complimentary Consultations (virtual or in-person)

We can schedule time with you to get to know your family’s needs and your child’s current stage of development, and discuss services and supports relevant to this stage of your journey. We want to make the process of engaging with our organization as easy as possible for your family. If you are not sure what you need or how we can help, signing up for a consultation is the best step forward. There is something we can do at every step of the journey to support your family.

 

Family Portal

Join other families on our family portal and stay connected with our organization.

COMING SOON!

We are currently in the process of creating our family portal.

Social Programs for Children

Designed and facilitated by our education team, we offer complimentary social programs for children 6 to 12 years old to learn essential social skills, make new friends, gain independence, enjoy movement and physical activity, and have fun.

Depending on the scheduled activity, parents will either have the opportunity to remain onsite for facilitated parent education, or enjoy a break spending time at nearby shops or restaurants.

*This service is complimentary, fully funded by our generous donors.

 

Pathways Therapy Services

Our therapeutic services, designed and facilitated by our highly skilled and licensed therapy team, equip your child with Down syndrome, his/her caregivers and extended family members, with skill-building strategies and individualized supports that are targeted to daily life in the home and community. The Pathways therapy team includes a Board Certified Behavior Analyst (BCBA), Occupational Therapists (OT), and Speech-Language Pathologist (SLP). Some services are designed for coaching caregivers and others are designed for direct intervention with your child with Down syndrome. Pathways therapy services may take place on our Lifelong Learning Campus in Mission, KS or through teletherapy.

*This service is private-pay, fee-for-service, and is significantly subsidized by our philanthropy. If finances are prohibitive, inquire about our county grant partnerships or funding support.

 

Long-Term Planning Consultations

We are committed to preparing children with Down syndrome for a meaningful, productive, and authentic adult life in the future. This requires providing assistance to parents and caregivers for future planning. This 3-session service provides individualized support to parents and caregivers to better prepare for the transition towards adulthood. Tasks and exercises within these sessions may include contacting your local CDDO, applying for public funding, accessing local ID/DD services, learning about supported decision making, and defining action steps towards long-term goals. Our Lifespan Service Team will help you prioritize and plan according to your child’s age and your family’s specific situation.

This service has a nominal fee-for-service, and is primarily funded by our generous donors.

 

Resources

Down Syndrome Innovations provides essential, vetted resources to parents of children with Down syndrome.

Health Care Information for Families of Children with Down Syndrome

The Down Syndrome Health Care Guidelines are a thoughtful composite of the input of many experts involved in the care of people with Down syndrome. They reflect current standards and practices of health care in the United States of America. They have been designed for a wide audience: for health care professionals who are providing primary care, as well as specialists, nursing personnel and other allied health professionals, educators and early intervention providers, and parents and other caregivers.

Other Websites

Here are some other sites that might be useful.

Down Syndrome Clinic at Children's Mercy Hospital

Down Syndrome Clinic at Children’s Mercy Hospital serves as a medical screening mechanism for children with Down syndrome from birth through adolescence, following the Health Care Guidelines created by the National Network of Medical Clinics for Children with Down syndrome. An experienced team of professionals with an expertise and interest in Down syndrome participate in a weekly Down Syndrome Clinic in which each provider meets with the scheduled patient and their family to review and evaluate the specific needs of each child.

Events

Check out our upcoming events.

Dual Diagnosis Seminar (Webinar)

Join doctors from Children’s Mercy Hospital as they provide an update on the incidence of dual diagnosis, how to test for ASD and best practices for supporting children with... READ MORE

Yoga stretch

Family Yoga (for All Ages!)

Join us for Family Yoga! During this 45-minute connection-time, we will sing, move, breathe, stretch and have fun practicing basic yoga techniques. Afterwards, enjoy a healthy snack and visit... READ MORE

  • Date/s:Saturday: October 9 & November 6
  • Time:10:00 - 10:45 am
  • Location:5916 Dearborn Street, Mission, KS 66202 (Lifelong Learning Campus for Down Syndrome Innovations)
  • Register

Children’s Social Group (In Person)

This group will focus on providing a safe, structured environment for children to practice social skills and interact with peers in their age group.   This group will be... READ MORE

  • Date:Every other Thursday: September 23 - November 4
  • Time/s:Option 1: 5 - 6 pm | Option 2: 6:15 - 7:15 pm
  • Register Here
  • Learn More
Ages 2 - 6

Early Childhood

Welcome families of children with Down syndrome! Down Syndrome Innovations offers services for the developmental progress and social success of your child, as well as educational opportunities and future planning support for parents and caregivers.

We are on this journey with you, now and throughout the lifespan of your child. Consider us your lifetime provider on this journey.