We are on this journey with you, now and throughout your lifespan. Consider us your lifetime provider on your journey.
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We encourage you to fill out this contact form so a member of our team can follow up with you and recommend relevant services and supports, and we can add you to our mailing list.
Down Syndrome Innovations offers services and support to families of adults with Down syndrome.
We can schedule time with you to get to know the needs of your adult loved one and all of the caregivers involved in his or her life. We will discuss services and supports relevant to this stage of the journey. We want to make the process of engaging with our organization as easy as possible for your family. If you are not sure what you need or how we can help, signing up for an intake consultation is the best step forward. There is something we can do at every step of the journey to support your family.
Join other families on our family portal and stay connected with our organization.
Our Skill Building and Social Groups for Adults (18 yrs+) take place on Tuesday evenings on Zoom. These groups are focused on building friendships and enjoying conversation in a low-pressure and casual environment, as well as learning skills driven by our organization’s six Pillars of Programming: Daily Living, Communication and Social Skills, Community Engagement, Self-Advocacy, Vocational Development, and Health, Wellness, and Safety.
Activities and topics include healthy eating, dealing with stress, online safety, importance of good hygiene, first aid, maintaining good mental health, and other essential skills. Additionally, we want to build independence and confidence, empower self-advocacy, and increase physical activity. Each meeting is an hour long and it is a safe space where adults can learn, chat and ask questions.
We know it’s difficult when we aren’t able to see and talk to friends in person, so we wanted to provide an opportunity for groups to get together and socialize virtually. Staff will be present to moderate each meeting and make sure everyone has a chance to share and be heard. For safety and security, Zoom meeting reminders and links will be sent directly to registered families the afternoon of the Zoom session.
Once it is safe to do so, future programs will move to an in-person setting with a virtual option available for those who live at a distance or cannot attend in-person.
* This service is complimentary, fully funded by our generous donors.
The Adult Continuing Education (ACE) program is our very own specialized education day program provided for adults with Down syndrome, aiming to maximize independence and promote productive community participation. Educational opportunities are based around our six Pillars of Programming: Daily Living, Communication and Social Skills, Community Engagement, Health, Wellness, and Safety, Self-Advocacy, and Vocational Development. ACE is a data driven, evidence-based program utilizing objective measures to define success for each self-advocate participating in the program.
We understand that each adult is unique and looking for their own experience from the ACE program. We have developed service options to meet your needs. All enrollment options receive access to the specialized programming, social networking activities, community engagement opportunities, and guest presentations as part of ACE’s unique schedule. Fill out our contact form below to request an appointment to discuss the ACE enrollment options as related to the needs of your adult participant.
ACE operates Monday through Friday, 9:00am to 3:30pm. Enrollment is available for full-time, part-time, and half-day schedules depending on the enrollment option selected. Options are limited based on current enrollment. Self-advocates enroll for a minimum of a full quarter (3 months).
* This service is private-pay, fee-for-service, and is significantly subsidized by our philanthropy. ACE is not an official affiliated provider at this time and therefore not reimbursable with HCBS/Medicaid funds. If finances are prohibitive, inquire about our county grant partnerships or funding support. Tuition costs and payment arrangements will be discussed in your intake appointment.
Our therapeutic services, designed and facilitated by our highly skilled and licensed therapy team, equip the adult with Down syndrome, his/her caregivers and extended family members, with skill-building strategies and individualized supports that are targeted to daily life in the home and community. The Pathways therapy team includes a Board Certified Behavior Analyst (BCBA), Occupational Therapists (OT), and Speech-Language Pathologist (SLP). Some services are designed for coaching caregivers and others are designed for direct intervention with the adult with Down syndrome. Pathways therapy services may take place on our Lifelong Learning Campus in Mission, KS or through teletherapy.
* This service is private-pay, fee-for-service, and is significantly subsidized by our philanthropy. If finances are prohibitive, inquire about our county grant partnerships or funding support.
Down Syndrome Innovations provides essential, vetted resources to adult self-advocates, and parents and caregivers of adults with Down syndrome.
Adult Down Syndrome Clinic at University of Kansas Medical Center supports the medical needs of individuals with Down Syndrome within adulthood. The Adults with Down Syndrome Specialty Clinic can serve as a medical home where you can establish an ongoing relationship with a personal health care provider to provide comprehensive, accessible and continuous care.
The Down Syndrome and Dementia Questionnaire is a tool which will assist families and caregivers in acquiring information on daily functioning skills for a person with Down syndrome. The questionnaire is useful for taking data across a number of years and date collected can be shared with medical professionals should a decline in functioning occur. We recommend families begin taking baseline data at age 30 and keep the documents in an accessible place for various family members to review and refer to over the years. You may wish to consult your primary care physician or neurologist before using the questionnaire as they may have additional advice or measurement tools they recommend
The National Down Syndrome Society (NDSS) provides us with this valuable resource on Aging and Down Syndrome. Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process. It is intended to be used by various learners: families, professionals, direct caregivers or anyone concerned with the general welfare of someone with Down syndrome.
We are on this journey with you, now and throughout your lifespan. Consider us your lifetime provider on this journey.