Welcome expectant and new parents / caregivers! Down Syndrome Innovations offers resources and support after a diagnosis of Down syndrome.
We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome, and we want you to know immediately that we are on this journey with you now, and throughout the lifespan of your child. We want you to consider us your child's lifetime partner on this journey!
Our Unique Approach
Our Lifespan Services Team created our Lifespan Services Framework, which is the core of how we approach our mission and our work.
This Framework is a person-centered framework where the entire course of our services and supports—across their lifespan—revolves around the story, preferences, strengths, uniqueness, needs and available support system of each individual we serve. It is a dynamic framework evolving across any age or lifespan stage. When applying this framework, our Team ensures that we are addressing 7 key skills geared towards advancing the individual within their home and community life: Communication, Social-Emotional Skills, Daily Living, Vocational Development, Community Engagement, Health and Wellness, and Safety.
Get Connected
Have you filled out our contact form?
We encourage you to fill out this contact form so a member of our team can follow up with you and recommend relevant services and supports, plus we can add you to our mailing list!
It is especially critical that we have the birth date of your child. Birth dates are very important as they guide us in which services and supports to recommend to families at each stage of life.
We will follow up with you promptly after we receive your contact form, but you are welcome to message us directly as well, as we want to be responsive to your needs: email us!
Services & Support
Down Syndrome Innovations offers services and support to parents expecting a child with a diagnosis of Down syndrome. From our quarterly New & Expectant Parents/Caregiver Breakfasts to serving as your one-stop place for all the resources you might need — we are here for you! We are ready to help guide you on your journey!
Your Personalized Newsletter
2024 Newsletters
Wherever you are on your journey, our expert Lifespan Services Team is with you continually finding new ways to offer innovative services for every age and season of life.
2021 Newsletter Archive
Hope Consultations
We can schedule time with you to get to know your family and your needs, as well as provide accurate and up to date information about Down syndrome and share stories that will give you hope about your baby’s future.
New Beginnings Magazine
Our New Beginnings Magazine provides all the important information you need to know at the time of diagnosis. You can read the magazine from our Flipbook below. Or you can click here to download a copy to view and read later.
Videos
Here are some great videos for you to watch.
Expectant Parents
Watch a video designed for expectant parents seeking more information.
Adoptive Parents
Adoptive parents, watch a video to learn more about adoptions of children with Down syndrome.
Other Websites
Down Syndrome Pregnancy is a wonderful resource which walks expectant couples through their pregnancies and provides many resources along with the ability to connect with other parents who have walked in your shoes. You can download a free e-book at this site as well.
Events
Check out our upcoming events for your loved one’s age range!
New / Expectant Parents & Extended Family Gathering (Fall)
This is an opportunity for new parents and extended family members (prenatal – 2 years old) to connect with others, who have a young child with Down syndrome. Meet... READ MORE
Evento En Español De Divulgación (Spanish-Speaking Information Event)
Nos complace invitarlo a un evento de alcance comunitario enfocado en construir una comunidad fuerte y brindar el mejor apoyo posible a nuestras familias. Este evento es gratuito. Serviremos... READ MORE
Connect & Play! (Various Locations, Ages 0 – 6)
Join us for a Connect and Play event near you (for expectant/newborn families through 6 years)! These events are your opportunity to grow your community through parent and caregiver... READ MORE
New / Expectant Parents & Extended Family Gathering
This is an opportunity for new parents and extended family members (prenatal – 2 years old) to connect with others, who have a young child with Down syndrome. Meet... READ MORE
2024 KC “Step Up for Down Syndrome” Walk
Please join us at our Kansas City Step Up for Down Syndrome Walk! Join Us for a “Reunion Style” Walk! Gather your “DREAM TEAM” and get ready to STEP... READ MORE
Family Fitness Tour
Join us on Saturday, September 14th for this special event to connect families all over the KC area with fitness, fun and healthy snacks! This event is led by... READ MORE
Growing up is hard. Growing up with Down syndrome can be a challenge all it's own. Fortunately, you have people all around this community that can relate and help you and your loved ones achieve the best life possible.
Down Syndrome Innovations creates tools and connects people that give you the best resources to achieve success. Our Lifespan Services are designed for you to join others at any phase in life. Whether you're an expectant parent of a child with Down syndrome or someone looking to....
Welcome expectant parents! Down Syndrome Innovations offers resources and support after a diagnosis of Down syndrome.
We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome, and we want you to know immediately that we are on this journey with you, now and throughout the lifespan of your child.