As the life expectancy of people with Down syndrome has increased, there are some unfortunate challenges associated with aging for our community – including Alzheimer’s disease. In fact, Alzheimer’s disease impacts close to 90% of people with Down syndrome, with the average age of diagnosis around 50 years of age.* This is why we are partnering with KU Alzheimer’s Disease Research Center (KU ADRC), an NIH Center of Excellence, to spread the word about the clinical programs, research studies, and clinical trials they have available specifically for people with Down syndrome.
Attendees will learn about the increased risk of Alzheimer’s disease in people with Down syndrome, including the reasons why they are at such a high risk. Additionally, we will discuss current and future treatment options. Followed by a Q & A session.
*According to Research by KU ADRC
Reminder: This event coincides with our 18+ Halloween Party (from 6 – 8 pm) for our free/donor-funded Social & Skill-building Program! You are welcome to bring your loved one/adult with Down syndrome to enjoy this event! BE SURE TO REGISTER BELOW!
Dr. Ptomey is an Associate Professor for the Department of Internal Medicine at the University of Kansas Medical Center. She is a Registered Dietitian with over a decade of experience working within the research field with expertise in weight management, physical activity, aging, and individuals with intellectual disabilities. She thematically leads disability based research at KUMC through serving as Director of the Brain Health in Down Syndrome program at the KU Alzheimer’s Disease Research Center, Associate Director of the Kansas Intellectual and Developmental Disabilities Research Center, and the Scientific Director of Clinical Research at the Center for Children’s Healthy Lifestyle and Nutrition.
Dr. Ptomey has been continuously funded by NIH since 2016, and has served as PI or MPI on 5 NIH R01s.
Education and Training
Licensure, Accreditations & Certifications
Licensed Dietitian , Academy of Dietetics and Nutrition
Professional Affiliations
Down Syndrome Medical Interest Group, Member, 2021 – Present
Academy of Nutrition and Dietetics, Pocket Guide to Children with Special Health Care and Nutritional Needs, Member, 2018 – 2018
Academy of Nutrition and Dietetics, Chair, 2013 – 2014
Academy of Nutrition and Dietetics, Member, 2006 – Present
Lauren T. Ptomey, PhD, RD, LD
Thursday, 10/24
The Connection Between Alzheimer’s Disease and Down Syndrome (Virtual, hosted by Dr. Ptomey)
Thursday, 11/7
Important Medical Update: New Treatment Options for Alzheimer’s Disease for People with Down Syndrome (Virtual version of our on-site event)
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