Long-Term Planning Consultations | Down Syndrome Innovations

Person Filling Out Form:

First Name

Last Name

Relationship to person with Down Syndrome

Phone

County

Person With Down Syndrome

First Name

Last Name

Birthdate

Please read each item below and select the checkbox to indicate understanding.

I understand that this long-term planning consultation is not meant to replace vital face-to-face appointments you may have with your CDDO, case-coordinators, benefits specialists, financial advisors, attorneys, etc, as they encourage families to seek this knowledge directly from these specialists.I understand that it is the goal of the Down Syndrome Innovations team to provide a comprehensive picture of what needs to get done, assistance with understanding a timeline for when things need to get done and provide some insight into how to prioritize, based on where you are in this moment of time. Our primary role is to be a lead community mobilizer and a vital support system in this process, but not the experts in the knowledge of public benefits.I understand that Down Syndrome Innovations can direct parents and caregivers to specialists in the area where you can get assistance with benefits, special needs planning, etc, but we will always provide you choices, as it is important for each family to vet the options and ultimately decide on their own which professional they work with. These decisions are made differently by each family, and there are many variables in those decisions including proximity, cost, personality, preference, availability, etc. DSI staff are determined to mobilize people and resources to assist you, but they are not responsible for the accuracy or customer service of those other parties.I understand that the primary area of expertise at Down Syndrome Innovations is in the services and supports needed for the people with Down syndrome themselves, and therefore we always want to supplement the conversation about long-term tactical planning with a conversation about how to support your loved one in his or her quality of life, skill-development, socialization, physical fitness, and mental health. I understand that Down Syndrome Innovations takes confidentiality very seriously and they will use this information only to guide the provision of resources and referrals, and only within the privacy of this consultation session. Caregivers may save or request a digital or hard copy of this data form and share per their discretion, but Down Syndrome Innovations will not directly share this information with anyone on your behalf, even with permission or a release of information. We encourage self-advocates and caregivers to be their own advocates when accessing additional resources in the community but we will assist with your preparation for your convenience.

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By Appointment

On-site or Virtual Appointments

Complimentary

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Long-Term Planning Consultation Interest Form (and baseline information for Long Term Services and Supports)