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Welcome expectant and new parents / caregivers! Down Syndrome Innovations offers resources and support after a diagnosis of Down syndrome.

We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome, and we want you to know immediately that we are on this journey with you now, and throughout the lifespan of your child. We want you to consider us your child's lifetime partner on this journey!

Our Unique Approach

Our Lifespan Services Team created our Lifespan Services Framework, which is the core of how we approach our mission and our work.

This Framework is a person-centered framework where the entire course of our services and supports—across their lifespan—revolves around the story, preferences, strengths, uniqueness, needs and available support system of each individual we serve. It is a dynamic framework evolving across any age or lifespan stage. When applying this framework, our Team ensures that we are addressing 7 key skills geared towards advancing the individual within their home and community life: Communication, Social-Emotional Skills, Daily Living, Vocational Development, Community Engagement, Health and Wellness, and Safety.

Get Connected

Have you filled out our contact form?

We encourage you to fill out this contact form so a member of our team can follow up with you and recommend relevant services and supports, plus we can add you to our mailing list!

It is especially critical that we have the birth date of your child. Birth dates are very important as they guide us in which services and supports to recommend to families at each stage of life.

We will follow up with you promptly after we receive your contact form, but you are welcome to message us directly as well, as we want to be responsive to your needs: email us!

Services & Support

Down Syndrome Innovations offers services and support to parents expecting a child with a diagnosis of Down syndrome. From our quarterly New & Expectant Parents/Caregiver Breakfasts to serving as your one-stop place for all the resources you might need — we are here for you! We are ready to help guide you on your journey!

Your Personalized Newsletter

2024 Newsletters

Wherever you are on your journey, our expert Lifespan Services Team is with you continually finding new ways to offer innovative services for every age and season of life. 

Prenatal to 2 year old newsletter

Hope Consultations

We can schedule time with you to get to know your family and your needs, as well as provide accurate and up to date information about Down syndrome and share stories that will give you hope about your baby’s future.

 

Down Syndrome Innovations provides essential, vetted resources to expectant parents following a new diagnosis.

New Beginnings Magazine

Our New Beginnings Magazine provides all the important information you need to know at the time of diagnosis. You can read the magazine from our Flipbook below. Or you can click here to download a copy to view and read later.

Videos

Here are some great videos for you to watch.

Expectant Parents

Watch a video designed for expectant parents seeking more information.

Adoptive Parents

Adoptive parents, watch a video to learn more about adoptions of children with Down syndrome.

Other Websites

You may also wish to visit the Brighter Tomorrows or National Down Syndrome Congress expectant parent websites to learn more.
Down Syndrome Pregnancy

Down Syndrome Pregnancy is a wonderful resource which walks expectant couples through their pregnancies and provides many resources along with the ability to connect with other parents who have walked in your shoes. You can download a free e-book at this site as well.

Events

Check out our upcoming events for your loved one’s age range!

Workshop: Mental Health and Resiliency in the ID/DD Community

Stronger Minds and Brighter Futures! Improving emotional well-being and quality of life is a priority within the mission of Down Syndrome Innovations. Join us for this workshop and learn... READ MORE

  • Date:Thursday, Dec. 12th
  • Time:6:30 - 8:00 pm
  • Location: Joe Herndon Branch Library: 6131 Raytown Road, Raytown MO
  • Learn More & RegisterClick Here!
  • Fee:GRANT-FUNDED/FREE - Made possible by funding from Children's Services Fund of Jackson County and Eitas

2025 New & Expectant Parents/Caregivers Gatherings

Join us at one (or all) of our Quarterly, New & Expectant Parents/Caregivers Family Gatherings! This is an opportunity for new parents and extended family members (prenatal – 2... READ MORE

  • 2025 Dates:Feb 8th; May 3rd; Aug 2nd; and Nov 1st
  • Time:9 -11 am
  • Learn More & RegisterClick Here!
  • Fee:FREE/DONOR-FUNDED thanks to our Step Up Walk donors, grantors, and Community Partners!

Family Holiday Parties at Down Syndrome Innovations!

Previous Next ‘Tis the Season! Pack up your sleigh and your immediate family and join us at Down Syndrome Innovations for a celebration of the ages! Enjoy festive activities,... READ MORE

  • Date - Option 1:Thursday, Dec. 5th from 4 - 6 pm
  • Date - Option 2:Saturday, Dec. 7th from 10 am - 12 pm
  • Learn More & RegisterClick Here!
  • Fee:FREE: Funded by our donors from the Step Up Walk, Grantors and Community Partners!

Growing up is hard. Growing up with Down syndrome can be a challenge all it's own. Fortunately, you have people all around this community that can relate and help you and your loved ones achieve the best life possible.

Down Syndrome Innovations creates tools and connects people that give you the best resources to achieve success. Our Lifespan Services are designed for you to join others at any phase in life. Whether you're an expectant parent of a child with Down syndrome or someone looking to....

New Parent

Welcome expectant parents! Down Syndrome Innovations offers resources and support after a diagnosis of Down syndrome.

We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome, and we want you to know immediately that we are on this journey with you, now and throughout the lifespan of your child.