Thriving Through Adulthood: Daily Living Strategies for Adults with Down Syndrome

with Morgan Hodges

Next session: March 25th, 2026

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As adults with Down syndrome live longer and healthier lives, families and caregivers play an essential role in supporting their independence, safety, and overall well-being. This presentation provides practical, evidence-informed strategies to help adults with Down syndrome successfully navigate the aging process.

Participants will learn how aging may uniquely impact physical, cognitive, sensory, and emotional health in individuals with Down syndrome and how to promote daily functioning at home and in the community. The presentation will cover key areas such as adapting activities of daily living, supporting mobility, promoting meaningful engagement, and implementing home and environmental safety strategies.

Caregivers will leave with tools, resources, and simple adaptations they can use right away to enhance quality of life, encourage independence, and ensure a safe and supportive environment as their loved one ages.

Morgan Hodges, OTR/L is a licensed Occupational Therapist committed to helping individuals build independence and improve daily living skills. She earned her Bachelor of Science in Kinesiology from the University of Arkansas and her Master of Occupational Therapy from the University of Kansas Medical Center. Morgan is passionate about providing client-centered, functional therapy to support meaningful participation in everyday life.

If you have any questions please email CJ, at cj@kcdsi.org

Let’s Talk About Puberty!

with Dr. Kristie Marble, DO

Next session: April 15th, 2026

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This presentation will focus on guiding families and caregivers through healthy, developmentally appropriate conversations about puberty, sexuality, and reproductive health. It will outline when to begin thinking about these topics and provide clear strategies for when and how to discuss them respectfully and age appropriately. Attendees will learn about useful resources—including recommended books, visual supports, and teaching tools—that can make these conversations easier and more accessible.

Overall, this session is designed to help caregivers approach sexual health education with confidence, clarity, and practical tools that support the well-being and autonomy of the individuals they care for.

Dr. Kristie Marble is a board-certified Pediatrician and a board-certified Pediatric Hospitalist at Children's Mercy Kansas City. In addition to her hospitalist role, she proudly serves as one of the pediatricians in the Multidisciplinary Down Syndrome Clinic. Her dedication to the Down syndrome community is both professional and deeply personal as it was sparked 17 years ago following the birth of her daughter, who was diagnosed with Down syndrome right after birth. This personal journey inspired her to become an expert in the field and commit herself to educating medical professionals. She is now excited to leverage both her clinical expertise and lived experience to support and educate other parents and families navigating their own paths, in partnership with Down Syndrome Innovations.

If you have any questions please email CJ, at cj@kcdsi.org

Advocating for your Child’s Medical Care

with Dr. Kristie Marble, DO

Next session: February 11th, 2026

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This presentation provides a clear overview of what to expect during well-child visits, including current Down syndrome medical guideline recommendations and the core responsibilities of a primary care provider. Key components such as growth and developmental monitoring, routine screenings, immunizations, and anticipatory guidance will be outlined to highlight what high-quality preventive care should include.

The session will also address common pitfalls and misconceptions that medical providers may have—such as missed developmental concerns, inconsistent follow-up of abnormal findings, or gaps in family education—and will describe how to recognize these issues in practice.

Dr. Kristie Marble is a board-certified Pediatrician and a board-certified Pediatric Hospitalist at Children's Mercy Kansas City. In addition to her hospitalist role, she proudly serves as one of the pediatricians in the Multidisciplinary Down Syndrome Clinic. Her dedication to the Down syndrome community is both professional and deeply personal as it was sparked 17 years ago following the birth of her daughter, who was diagnosed with Down syndrome right after birth. This personal journey inspired her to become an expert in the field and commit herself to educating medical professionals. She is now excited to leverage both her clinical expertise and lived experience to support and educate other parents and families navigating their own paths, in partnership with Down Syndrome Innovations.

If you have any questions please email CJ, at cj@kcdsi.org

Empowering Voices: AAC and Total Communications Strategies

with Katie Craddock

Next session: March 12th, 2026

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This presentation introduces practical, easy-to-use tools that help individuals with Down syndrome express themselves more confidently. Caregivers will learn how AAC (Augmentative and Alternative Communication) and total communication approaches—like gestures, visuals, signs, and devices—can work together to support understanding, reduce frustration, and build meaningful everyday communication at home and in the community.

Katie Craddock, CCC-SLP is a certified Speech-Language Pathologist dedicated to supporting individuals in developing effective communication skills. She earned her Bachelor of Science in Communication Disorders and Sciences from the University of Central Missouri and her Master of Science in Speech-Language Pathology from Rockhurst University. Katie is passionate about providing evidence-based, client-centered therapy to help people of all ages reach their full communicative potential.

If you have any questions please email CJ, at cj@kcdsi.org

Functional Fitness

with Scott Quaife

Next session: January 29th, 2026

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Designed for all ages! Join us for an educational seminar that will not only address the main health challenges of people with Down syndrome, but also how to address them at every stage of life. Scott Quaife, NSCA-CPT, our Health and Wellness Coordinator, will discuss a variety of ways to incorporate physical activity into your loved one's daily life, as well as common modifications for exercise, alternatives for footwear and motivational strategies.

Scott Quaife, NSCA-CPT, PNL1 is a dedicated Health and Wellness Coordinator with a passion for helping individuals build sustainable, healthy lifestyles. He studied Behavioral Science at the University of Kansas and is a Certified Personal Trainer through the National Strength and Conditioning Association. Scott is also a Precision Nutrition Level 1 Coach, bringing a well-rounded, evidence-based approach to fitness, nutrition, and behavior change.

If you have any questions please email CJ, at cj@kcdsi.org

Alzheimer’s and Down Syndrome: A Parent to Parent Conversation

with Sarah Mai

Next session: April 14th, 2026

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Join us for this meaningful parent-to-parent conversation on Down syndrome and Alzheimer’s disease with Buddy and Carolyn Jones, in collaboration with Down Syndrome Innovations (DSI) and KU Alzheimer's Disease Research Center (KU ADRC). In addition to sharing their family’s personal story, Buddy and Carolyn will encourage other parents to develop an action plan for their loved one to deal with the potential of Alzheimer's and take steps to perhaps delay the development of the disease.

Buddy and Carolyn Jones have been effective trailblazers and system-change advocates throughout their son's entire life, as well as being mentors and supportive friends to so many parents, service providers, and physicians. Additionally, Buddy and Carolyn have remained in close contact with the teams at Down Syndrome Innovations and the KU Alzheimer’s Disease Research Center, providing vital parent perspectives on services, interventions, and research.

Now they have chosen to sit down for an intimate conversation with other parents who could face a similar experience with their aging loved one, and ensure no one else feels isolated or without resources in this stage of the journey.

At the conclusion of their presentation, both DSI and KU ADRC will discuss services and supports they offer for aging individuals with Down syndrome and their caregivers.

All attendees are welcome to come at 6:00pm for a casual caregiver connection time prior to the presentation. DSI will provide drinks and refreshments during this time.

Mental Health & Resiliency in the ID/DD Community

with CJ Vallejo

Next session: April 6th to December 18th, 2026

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This Caregiver Education event will be offered multiple times during the 2026 service year. Dates and locations coming soon, so check back in, or go ahead and register and we will send you current information.

Trailblazing best practices in mental health services for people with Down syndrome and other developmental disabilities is a priority within the mission of Down Syndrome Innovations. Join this workshop and learn strategies to ensure your loved one, or the people you serve, are living their best lives. Megan DeBoom, Board Certified Behavior Analyst, and Lisa Lind, licensed clinical social worker, will demonstrate strategies for healthy coping and emotional regulation that can be used by members of your family and service providers on your team. You will walk away with visual supports and ideas that you can implement right away to ensure that you, the ones you love, and the ones you serve, are equipped to manage stress and navigate the challenges of everyday life. Instruction is relevant for supporters of individuals with Down syndrome and other developmental disabilities of all ages and stages.

Topics covered will include, but not limited to:

• A strengths-based approach to emotional well-being

• Research and best practices for the ID/DD community

• Building protective factors for health and wellness

• Family resiliency and healthy coping

• Co-regulation of emotions

• Skills related to managing conflict and relationships

• Grief, loss, and stressful transitions

• Self-care and wellness

Special thanks to grant funding from Children's Services Fund of Jackson County and EITAS, for providing life-changing funds that allow Jackson County residents to access critical mental health services and providing the means for us to offer these workshops to families and service providers throughout the Kansas City metropolitan area.