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Spring Music and Motion for Little Ones (Central MO)

with Alyssa Jones

Next session: March 28th, 2026

Free More Info

Join us on March 28th, from 10:30 to 11:30, for a joyful and engaging class designed for babies, toddlers, and their caregivers! Music & Motion blends tummy time, music, and movement to support early development in a fun, relaxed setting. Each session includes songs, mini instruments, and gentle guided movement — followed by time to connect with other parents over coffee and snacks. 

Whether you’re a new parent or looking to build your village, this is a great space to bond, play, and grow together. 

This service is for babies and toddlers with Down syndrome who are 6 months- 3 years old and caregivers. 

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Spring Rhythm & Play for Preschool & Elementary Age (Central MO)

with Alyssa Jones

Next session: March 28th, 2026

Free More Info

Rhythm & Play on March 28th, from 12:45 to 2:00pm, invites young children to move, groove, and explore, alongside their parents, in a fun, developmentally supportive environment. Each session begins with upbeat music and simple dance movements that build coordination, balance, and body awareness. Children will sing, stretch, and move their bodies creatively as they follow along with guided rhythm activities. 

Designed for all abilities, this class encourages social connection, creativity, and joyful movement—helping children build important skills while having a blast.

If you have any questions please email alyssa@kcdsi.org

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Join us for this meaningful parent-to-parent conversation on aging, dementia, grief and Down syndrome with Buddy and Carolyn Jones, in collaboration with Down Syndrome Innovations (DSI) and KU Alzheimer's Disease Research Center (KU ADRC). In addition to sharing their family’s personal story, Buddy and Carolyn will encourage other parents to proactively develop a plan for their loved one in anticipation of regression in the aging years and specifically, Alzheimer's disease. 

Buddy and Carolyn Jones have been effective trailblazers and system-change advocates throughout their son's entire life, as well as being mentors and supportive friends to so many parents, service providers, and physicians. Additionally, Buddy and Carolyn have remained in close contact with the teams at Down Syndrome Innovations and the KU Alzheimer’s Disease Research Center, providing vital parent perspectives on services, interventions, and research.

Now they have chosen to sit down for an intimate conversation with other parents who could face a similar experience with their aging loved one, and ensure no one else feels isolated or without resources in this stage of the journey.

Both DSI and KU ADRC acknowledge the science that nearly all adults with Down syndrome will develop evidence of Alzheimer’s disease by late middle age, and therefore  our organizations are taking an active role in education, research, services and supports for aging individuals with Down syndrome and their caregivers. At the conclusion of this presentation, DSI and KU ADRC will guide families in practical next steps.  

All attendees are welcome to come at 6:00pm for a casual caregiver connection time prior to the presentation. DSI will provide drinks and refreshments during this time. 

Service providers and medical professionals are welcome to join to learn and observe. However, we will prioritize the questions of caregivers and parents due to time limitations and the goals of the speakers.  DSI is available to all community partners as a resource in the area of aging and Down syndrome and follow-up consultation is available. 

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Let’s Talk About Puberty!

with Dr. Kristie Marble, DO

Next session: April 15th, 2026

Free More Info

This presentation will focus on guiding families and caregivers through healthy, developmentally appropriate conversations about puberty, sexuality, and reproductive health. It will outline when to begin thinking about these topics and provide clear strategies for when and how to discuss them respectfully and age appropriately. Attendees will learn about useful resources—including recommended books, visual supports, and teaching tools—that can make these conversations easier and more accessible.

Overall, this session is designed to help caregivers approach sexual health education with confidence, clarity, and practical tools that support the well-being and autonomy of the individuals they care for.

Dr. Kristie Marble is a board-certified Pediatrician and a board-certified Pediatric Hospitalist at Children's Mercy Kansas City. In addition to her hospitalist role, she proudly serves as one of the pediatricians in the Multidisciplinary Down Syndrome Clinic. Her dedication to the Down syndrome community is both professional and deeply personal as it was sparked 17 years ago following the birth of her daughter, who was diagnosed with Down syndrome right after birth. This personal journey inspired her to become an expert in the field and commit herself to educating medical professionals. She is now excited to leverage both her clinical expertise and lived experience to support and educate other parents and families navigating their own paths, in partnership with Down Syndrome Innovations.

If you have any questions please email CJ, at cj@kcdsi.org

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321 Fit – a fitness event for all ages!

with Scott Quaife

Next session: April 18th, 2026

Free More Info

SAVE-the-DATE for now because you don't want to miss this event! This event posting will be updated in January with more details. Stay tuned to our social media and email announcements.  

Hosted by Down Syndrome Innovations, Special Olympics Kansas, and The University of Kansas Medical Center, 321 Fit is a fitness event for all ages that features interactive fitness stations, presentations from self-advocates, a caregiver session, Zumba, healthy snacks, giveaways, and booths from local organizations and businesses serving the Down syndrome community.

This event is designed not only to inspire your self-advocate to be active and healthy, but also allows them to participate in it right away! There is something for all ages, abilities, and interests! We hope to see you there to continue you on your fitness journey with us!

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A Caregiver’s Guide to Supporting Career Development

with Amanda Myers

Next session: April 21st, 2026

Free More Info

Join us for an educational event in the northland of Kansas City on how to support your self-advocate when navigating their employment journey and supporting their career development. Our Director of Employment Services, Amanda Myers, CESP, will share practical tools and strategies to help caregivers guide their loved one from early job preparation to long-term career growth. You'll leave this presentation feeling more prepared and empowered as a partner in your loved one’s employment journey.

Special thanks to Platte County Board of Services for being a funding partner in 2026 and assisting Platte County residents to access vital services and supports through DSI for employment.

Service providers, case managers, and employers, are more than welcome to attend to benefit from this valuable information as well.  

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Neuru: The Command Center for Your Child’s Care

with CJ Vallejo

Next session: April 30th, 2026

Free More Info

Neuma is a secure, all-in-one platform designed to help families manage the many moving parts of their loved one's care without the overwhelm. We centralize school plans, medical records, and therapy notes into one easy-to-use system, so everything you need is always in one place. You have the ability to import records directly from hospital systems like Advent, Children’s Mercy, St. Luke’s, University of Kansas Health System, and more.

Instead of juggling emails, binders, portals, and paperwork, families can quickly access, organize, and share critical information with teachers, therapists, doctors, and caregivers. Neuma helps ensure everyone on your child’s care team stays informed, aligned, and focused on what matters most: supporting your child’s growth and success.

Built with neurodiverse families in mind, Neuma reduces stress, saves time, and brings clarity to complex care, so families can spend less time managing logistics and more time being present.

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This seminar will focus on providing parents and caregivers with a clear understanding of the IEP transition process, from the legal requirements to the best practices for ensuring a smooth and successful transition from school to post-school activities.

With a focus on education, employment, and independent living, the seminar will break down the steps parents can take to actively support their child’s growth and future planning, offering actionable strategies and resources that can make a real difference. 

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Summer Celebration (Central Missouri)

Next session: June 13th, 2026

Free More Info

We are hosting a Summer Celebration for all of our central Missouri families in Columbia, Missouri! This event posting will be updated soon with more details. We are aiming for one of the first Saturdays of June. Stay tuned to our social media and email announcements.

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Homecoming Parade (Central Missouri)

Next session: October 3rd, 2026

Free More Info

Pending acceptance of our application, we will again be joining the Mizzou Homecoming Parade and would like to invite all of our central Missouri families in Columbia, Missouri! 

Mizzou Homecoming 2026 is officially set for Saturday, October 3, 2026, centered around the home football game against the Florida Gators at Faurot Field, marking the university's 115th Homecoming celebration